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18 March 2016 Lily Lou’s 7th rebirthday!

Posted by Mark

Today was Lily Lou’s 7th bone marrow Bday, and we feel lucky! Lily Lou is still going strong, attending school, playing field hockey and enjoying life! Next month we will return to Orlando with Lily Lou, her best friend Mirthe and her little sister Roosje, almost 8 years after our Make-a-wish adventure, to celebrate once more her second chance at life!

18 March 2015 Lily Lou’s 6th bone marrow Bday!

Posted by Mark

Today we celebrated Lily Lou’s 6th bone marrow Bday! We had a really big Bday cake and went shopping. Lily Lou is still going strong!

April 1, 2014 5 years post transplant!!!

Posted by Mark

Lily Lou celebrated her 5th bone marrow Bday on April 1st! She handed out delicious cupcake gifts and “kanjerketting” wristbands (in support of a charity for children with cancer) to her classmates. Lily Lou is still doing great!

14 April 2013: Lily Lou’s 4th BM Bday party!

Posted by Mark

April 1, 2013 Lily Lou’s 4th bone marrow Bday

Posted by Mark


Lily Lou celebrated her 4th bone marrow Bday on April 1st, exactly 4 years after her new bone marrow started working. Together with her best friend Mirthe and oma Bos we enjoyed chocolate cake, and went shopping. Life is good these days!

August 2, 2012 Lily Lou’s 10th Birthday!

Posted by Mark


Lily Lou celebrated her 10th birthday on our favorite island in the North of The Netherlands, together with her family, friends and her grandmother Oma Bos. It was a memorable day with lots of Harry Potter birthday cake, great gifts, a trip to the pool and dinner at her favorite Pirate restaurant.
On the medical front no news, next week Lily Lou will have another check-up but she is feeling fine, with lots of energy. School started earlier this week, as did field hockey practice and she is actually enjoying both!

April 1, 2012 Lily Lou’s third rebirthday

Posted by Mark

It has been a while, but no news is usually good news. Lily Lou celebrated her 3rd rebirthday (March 18) a little bit late this year, since her grandfather (opa Kees) sadly passed away on March 16. On April 1, the day her new bone marrow started working 3 years ago, we celebrated that we are so happy that her bone marrow is still doing a great job, and thusfar all doctor’s vistis are uneventful. Lily Lou is living a great active life without restrictions and to the fullest!

November 19, 2011

Posted by Mark

The turkey has been ordered: we are getting ready for the holiday season! Next week we will celebrate Thanksgiving with our family, one week later Sinterklaas will visit all Dutch kids with gifts, and the week after we will decorate our Xmas tree. Lily Lou is doing fine, and her recent check-ups were uneventful. She is very much looking forward to the holiday season and has urged me to make another jibjab Xmas video:

Personalize funny videos and birthday eCards at JibJab!

Summer 2011 was great!

Posted by Mark

April 3, 2011 Lily Lou celebrates 2nd bone marrow rebirthday

Posted by Mark


On March 18 it was 2 years ago that Lily Lou received her new bone marrow from a generous anonymous donor. Today she celebrated this happy occasion with her daddy and her friends in amusement park Efteling. They had a great time!!!

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